Coeliac disease in children: spotting the symptoms, and the one mistake to avoid

UPDATED=2026-09-28READ=4 MINREVIEW=HTGF EDITORIAL

If you’re searching for ‘coeliac symptoms child’, you probably have a suspicion and are feeling worried. This overview helps you understand what to look out for. It is not a diagnosis: only a paediatrician or GP can provide one. But there is one thing you absolutely need to know first.

The most important thing first: only remove gluten AFTER testing, never before. The diagnosis for coeliac disease, for both the blood test and the tissue sample, only works if your child is still eating gluten. If you switch to a gluten-free diet beforehand, the test can be falsely negative, and getting a clear answer will be delayed by months. So: see your paediatrician or GP first, then change their diet.

What coeliac disease is

Coeliac disease is an autoimmune condition. In people with coeliac disease, the immune system attacks the lining of their own small intestine after they eat gluten (from wheat, barley and rye). It is not an allergy, not an intolerance in the everyday sense of the word, and certainly not a dietary fad. It can appear at any age, often in early childhood after grains are introduced to their diet.

Possible signs in children

Coeliac disease presents in many different ways. That’s what makes it so tricky. Some children have obvious stomach problems, while others have almost no visible symptoms (the ‘silent’ form). Possible signs include:

  • Stomach and gut: recurring tummy aches, bloating, a swollen belly, diarrhoea or constipation, unusually foul-smelling, bulky stools.
  • Growth & weight: Failure to thrive. The child isn’t growing or gaining weight as expected, even though they eat enough. This is one of the most important warning signs in childhood.
  • Blood & nutrients: a persistent iron deficiency that can’t be easily explained.
  • Behaviour & general wellbeing: tiredness, irritability, being tearful, listlessness, a drop in performance. These are changes that are easily blamed on other things.

None of these signs on its own proves coeliac disease, and many have harmless causes. On the other hand, a child with no obvious symptoms doesn’t rule out coeliac disease either. This is exactly why getting a clear answer should be left to a medical professional, and not to a home test or a self-prescribed exclusion diet.

How the diagnosis actually works

The process is clear and well-established, and your child continues to eat normally throughout:

  1. Appointment with your paediatrician or GP. Describe what you’ve observed. It’s a good idea to look at their height over time.
  2. Blood test. This measures specific antibodies (especially transglutaminase IgA, or tTG-IgA). It’s the first reliable indicator.
  3. Further investigation. Depending on the result, this is followed by confirmation, traditionally via a small intestine biopsy with a paediatric gastroenterologist. For children, a diagnosis without a biopsy is also sometimes possible under certain conditions. Your doctor decides this, not the internet.

The diagnosis is often delayed. If your gut feeling tells you ‘something isn’t right’, that’s a good reason to proactively ask for a test.

And if it is coeliac disease?

Then the good news is this: the treatment is a strict gluten-free diet. Children with coeliac disease who stick to it usually feel completely well and catch up on their growth. We have put together detailed guides on how to manage this well in everyday life, at nursery and at school.

Further reading

Newly diagnosed? Our complete guide for a child with coeliac disease at school takes the organisational work off your hands, from the letter to parents to the school canteen. And for those first practical steps, we have everyday gluten-free help, like our recipe for gluten-free play dough.

This text is for information only and does not replace medical advice. Sources: NHS, coeliac disease (checked 28 September 2026); ESPGHAN guidelines for diagnosing coeliac disease in children (2020); Deutsche Zรถliakie-Gesellschaft (DZG). If you suspect coeliac disease, always consult your paediatrician or GP before making any dietary changes.

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